FDA Approved New ALS Medication Funded By Ice Bucket Challenge

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Washington, D.C., September 29, 2022 – The ALS Association, the country’s largest nonprofit committed to making ALS livable and finding a cure, today celebrated the Food and Drug Administration’s (FDA) approval of AMX0035, a new treatment for people living with amyotrophic lateral sclerosis (ALS), a fatal neurodegenerative disease. The Association invested $2.2 million of funds raised through the 2014 ALS Ice Bucket Challenge into the development and trial of AMX0035, and led the years-long advocacy campaign that pushed the FDA to approve the treatment prior to completion of an ongoing phase 3 trial. 

“We thank the millions of people who donated, participated, and enabled us to invest in promising therapies like AMX0035 that will immediately help people living with ALS,” said Calaneet Balas, president and CEO of the ALS Association. “This is a victory for the entire ALS community, which came together to advocate for early approval of AMX0035. We still have a lot of work to do to cure ALS, but this new treatment is a significant step in that fight.”

Since the Ice Bucket Challenge, the ALS Association has spent over $127 million on ALS research and is currently funding 130 research projects in 12 countries. The Association is currently funding 40 potential treatments in the drug development pipeline. 

 

https://www.als.org/stories-news/fda-approves-first-als-treatment-funded-ice-bucket-challenge

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ARTPOP's impact

[AsleepOnTheCeiling 6,974]

I'm glad the challenge made it possible. I remember when it became a thing and the option was to donate $100 or donate $10 and do the challenge. But everybody overlooked the $10 portion and just dumped ice buckets on themselves. 

[FATCAT 60,888]

[Economy 52,861]

Who owns the patent and rights?

 

If this non-profit association payed for most of the research costs and some other company has exclusive rights and sells each pill for $28847394799 dollars Imma find the executives of that company and