Jesy Nelson's campaigning leads to screening for SMA across the whole of England

[Gimme More 35,802]

Incredible news, Jesy has been campaigning for this and attended Parliament recently to push for this 👏

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ALL babies in England will get free NHS tests for the muscle wasting disease suffered by Jesy Nelson's twins following a campaign by the Little Mix star.

In a breakthrough rule change, screening for spinal muscular atrophy will be added to the newborn blood spot test from October.

The Department of Health announced on Thursday that the national newborn screening programme for SMA will be rolled out across England as part of an evaluation programme from the end of this year.

Hundreds of thousands of babies will be screened as part of the simple heel prick blood test shortly after birth.

Nelson said: "After years of campaigning, it means so much to see the heel prick test for SMA begin rolling out from October, with implementation continuing throughout 2027 until every newborn screening laboratory across the UK is offering the test.

"Today is a day of hope.

"Knowing that future families will have access to early diagnosis and the opportunity for the best possible outcomes is something I'm incredibly proud to have supported.

"This is a victory for every family affected by SMA. Whilst it can't change the future of our children, I know it marks the beginning of a brighter future for future SMA families."

SMA UK, the charity which Jesy is a Patron of have also posted about the news:

This achievement belongs to the entire SMA community.

To every family who has shared their experiences, every healthcare professional who has championed early diagnosis, every researcher who has generated theevidence, every policymaker who has listened, every partner organisation to has campaigned alongside us and every supporter who has stood alongside us, thank you.

We are also grateful to Jesy Nelson for helping to shine a spotlight on SMA and the importance of newborn screening. Her willingness to share her family's experience has helped raise awareness among the wider public and has added an important voice to a campaign that has been driven by the SMA community, clinicians, researchers and supporters over many years.

https://x.com/jesynelson_stan/status/2077668497459458405?s=46

 

[Duella Dvil 11,574]

Explain in pop termz

[Republicanne 7,843]

2 minutes ago, Duella Dvil said:

Explain in pop termz

Girl did you even try to read it 

[Gimme More 35,802]

5 minutes ago, Duella Dvil said:

Explain in pop termz

Not 'pop termz' but Jesy had twins last year and if they were checked at birth they would have been able to walk and not need breathing machines to live. Jesy has been campaigning for checks to be done at birth to stop other children dying or becoming disabled like her two children. Jesy's babies will never be able to walk and cannot hold their heads up. If Jesy did not pick up the symptoms they would have died before their 2nd birthday. So following her campaign all babies in England will be screened for SMA.