Celine Dion Lost Control Of Her Muscles A Year After Make Her Health Issues Public

[RAMROD 104,089]

Celine Dion, 55, has lost the ability to control her muscles as she continues to battle stiff-person syndrome, a rare neurological disorder, her sister shared.
 

One year after sharing she was diagnosed with stiff-person syndrome, the singer can no longer control certain body movements, according to her sister Claudette Dion.

"She doesn't have control over her muscles," Claudette told 7 Jours, via translation from French. "What breaks my heart is that she's always been disciplined. She's always worked hard. Our mother always told her, 'You're going to do it well, you're going to do it properly.'"

She noted, "It's true that in both our dreams and hers, the goal is to return to the stage. In what capacity? I don't know."

In May, Celine canceled her Courage World Tour due to the rare neurological disorder, which can cause painful muscle spasms and stiffness.

"I'm so sorry to disappoint all of you once again," the 55-year-old wrote on Instagram at the time. "I'm working really hard to build back my strength, but touring can be very difficult even when you're 100%. It's not fair to you to keep postponing the shows, and even though it breaks my heart, it's best that we cancel everything now until I'm really ready to be back on stage again."

According to Claudette, their sister Linda has been living with Celine in the Las Vegas area as she receives care from doctors who specialize in stiff-person syndrome.

https://www.eonline.com/news/1391696/celine-dion-has-lost-control-of-muscles-amid-stiff-person-syndrome-battle

 

  

Edited December 19, 2023 by RAMROD

[Controversiaga 9,242]

So unfair how life plays out

[ElectricChapelR 1,959]

This breaks my heart so bad. I'm so attached to her and her music.

She is one of those singers that she's knew from the beginning she was chosen by the universe to be a gift to the whole world.

She is the greatest voice in history in my opinion and no one can sing love songs with so much emotion like her.

🥲

[pachinko 9,899]

Is this sattire or real? Is “stiff-person” a thing?

Edited December 19, 2023 by pachinko

[Controversiaga 9,242]

Just now, pachinko said:

Is this sattire or real? Is “stiff-person” a thing?

It’s very real 

[Ultimecia 6,025]

On t'aime Céline!

[RAMROD 104,089]

20 minutes ago, pachinko said:

Is this sattire or real? Is “stiff-person” a thing?

I would not joke on things like this, especially on news sections.

Stiff person syndrome is very rare. About 1 out of every 1 million people have the syndrome, and most general neurologists will see only one or two cases in their lifetimes, Moukheiber said.

The first case of stiff person syndrome was reported in the 1950s, according to Newsome, and the disease was historically referred to as “stiff man syndrome.”

Since then, it has been found to affect twice as many women as men, and the name was changed to stiff person syndrome to avoid confusion.

The condition can develop at any age, but symptoms most often begin in a person’s 30s or 40s, according to the Cleveland Clinic.

Stiff person syndrome is characterized by muscle rigidity and spasms, heightened sensitivity to stimuli such as sound and lights, and emotional distress that can cause muscle spasms, according to the National Institute of Neurological Disorders (NINDS) and Stroke. Over time people with the condition can develop “hunched over postures,” the NINDS said.

The condition typically begins with muscle stiffness in the middle part of the body, the trunk and abdomen, before advancing to stiffness and spasms in the legs and other muscles, according to the Cleveland Clinic.

The muscle spasms can be “quite severe. These can cause falls, severe pain and significant disability,” said Dr. Emile Sami Moukheiber of the Stiff Person Syndrome Center at Johns Hopkins Medicine. “Falls from severe spasms are very common. These spasms can be precipitated by startle, severe emotions, cold weather.”

These spasms can be strong enough to fracture bone, and any fall can lead to severe injury.

The syndrome can also cause anxiety.

“Many patients, if not all, have an anxiety that is intrinsic to the disease and that anxiety actually feeds on the physical ailments of the disease that people can have,” Dr. Scott Newsome, director of the Stiff Person Syndrome Center, said in a video on the organization’s website.

At times, people with stiff person syndrome may be afraid to leave their homes because “street noises, such as the sound of a car horn, can trigger spasms and falls,” the NINDS noted.

https://amp.cnn.com/cnn/2023/05/26/health/stiff-person-syndrome-explainer-wellness/index.html

 

According to MedicineNet, individuals diagnosed with stiff person syndrome can live between 6 to 28 years from the onset of symptoms before succumbing to the condition.

While there is currently no cure for SPS, several treatments aim to manage symptoms or slow down the progression of the disorder.

Patients have options such as immunotherapy or disease-modifying treatments to alleviate their condition.

https://m.economictimes.com/news/international/uk/celine-dions-diagnosis-unraveled-what-is-stiff-person-syndrome-triggers-symptoms-treatment/articleshow/102431036.cms#

[Levine 22,369]

My god, no  

[Vincem 380]

Edited December 19, 2023 by Vincem

[Wolf Boy 3,131]

Very sad. I wonder what the recovery rate on this is? 

[Modern Ecstasy2 2,147]

1 hour ago, Wolf Boy said:

Very sad. I wonder what the recovery rate on this is? 

My understanding is there is no cure, it’s degenerative. A person with it could remain in the same state for a relatively long period of time, but over time it will only get worse.

[HelloHangoverz 15,542]

What a shame. She seems like such a lovely, kind person with a sweet soul.

[GagasEnigma4 843]

2 hours ago, Modern Ecstasy2 said:

My understanding is there is no cure, it’s degenerative. A person with it could remain in the same state for a relatively long period of time, but over time it will only get worse.

This is absolutely devastating. 

[FFXIV WhiteMage 5,307]

this is so saddening 

i love her and her music, certainly one of my faves of all time 

[Wolf Boy 3,131]

12 hours ago, Modern Ecstasy2 said:

My understanding is there is no cure, it’s degenerative. A person with it could remain in the same state for a relatively long period of time, but over time it will only get worse.

Terrible, especially with her hopes of getting back to the stage. Poor thing.