Let's discuss Fibromyalgia as a discredited disease.

[SilkSpectre 114]

13 minutes ago, Swine said:

By colleagues I mean doctors as well, since I work in a hospital. And even as a dentist, I have the same ground education as any family doctor. It just happens that I choose to treat conditions from the neck up. Fibromyalgia is a part of the basic education in the health sector, and it affects my work every week since patients with fibromyalgia also shows some other conditions related to my specific area of work. Stop trying to dismiss my profession or my knowledge. There's literally minors here using google as a "scientific source" and there's no discussion about that at all.

I'm not belittling your profession I'm pointing out that fibro is a complex condition that even family doctors have a basic (if any) understanding of so you saying you have the same ground education as them still doesn't back up your post. There is a reason why a family doctor wouldn't treat or even diagnose fibro, they would refer the patient to a specialist/consultant. There's also a reason why no one goes to their dentist when they are sick and why they don't go to their doctor to get their teeth checked so my stay in your lane point stands. I would say the same thing if you were a doctor but you specialised in a different area - you are not in a position to comment. I'm still keen to know what these doctors specialise in that were laughing? 

[Swine 504]

12 minutes ago, SilkSpectre said:

I'm not belittling your profession I'm pointing out that fibro is a complex condition that even family doctors have a basic (if any) understanding of so you saying you have the same ground education as them still doesn't back up your post. There is a reason why a family doctor wouldn't treat or even diagnose fibro, they would refer the patient to a specialist/consultant. There's also a reason why no one goes to their dentist when they are sick and why they don't go to their doctor to get their teeth checked so my stay in your lane point stands. I would say the same thing if you were a doctor but you specialised in a different area - you are not in a position to comment. I'm still keen to know what these doctors specialise in that were laughing? 

If you go through my comments, I have yet to give my personal opinion on fibromyalgia. What I have been commenting here is the general image of the disease in the health world.

There's no specialist to treat fibromyalgia. Most of the cases are handled by rheumatologists, and even they have a hard time taking care of it. There's no real treatment for a disease with no proved etiology. The treatment is mostly symptomatic.

There's no stopping point when it comes to areas of intervention. I have recommended some patients to search for help with their doctors to search for the diagnosis of diabetes, HPV or even HIV. I have done diagnosis that ended up sending patients to chemo with terminal cancers, sadly. I have concluded with some of my patients that it could be helpful if they searched for some help in the psychological field. There's no frontier of intervention, everything is correlated. We don't treat just teeth.

Just like any other health professional, everyone has access to scientific P2P research. Of course, then comes experience of those who maybe deal with the condition everyday. But still, the etiology of fibromyalgia is unknown, and so is the treatment. Research is still being done.

[DisBihh 16]

14 hours ago, Katie14 said:

I thought it was interesting that Gaga said her thyroid issue is "unrelated." Maybe its unrelated to her hip injury, but fibromyalgia and hypothyroidism are very much related. I think at the time the documentary was shot, Gaga and her doctors had very little idea of what was wrong with her. 

YEAH and even in the time of the documentary, she was very likely to be experiencing temporomandibular joint disorder which is why her neck head and jaw hurts because the muscles tight it up and this causes migraines and ringing and stuff so its very unfortunate all this

[SilkSpectre 114]

27 minutes ago, Swine said:

If you go through my comments, I have yet to give my personal opinion on fibromyalgia. What I have been commenting here is the general image of the disease in the health world.

There's no specialist to treat fibromyalgia. Most of the cases are handled by rheumatologists, and even they have a hard time taking care of it. There's no real treatment for a disease with no proved etiology. The treatment is mostly symptomatic.

There's no stopping point when it comes to areas of intervention. I have recommended some patients to search for help with their doctors to search for the diagnosis of diabetes, HPV or even HIV. I have done diagnosis that ended up sending patients to chemo with terminal cancers, sadly. I have concluded with some of my patients that it could be helpful if they searched for some help in the psychological field. There's no frontier of intervention, everything is correlated. We don't treat just teeth.

Just like any other health professional, everyone has access to scientific P2P research. Of course, then comes experience of those who maybe deal with the condition everyday. But still, the etiology of fibromyalgia is unknown, and so is the treatment. Research is still being done.

So you're just gonna avoid my question of what these doctor friends specialise in?Are they consultant rheumatologists? Also there are many conditions with an unknown etiology, does not mean we dismiss the condition. Just because we can't cure a condition doesn't mean you cannot treat its symptoms as well. 

[Swine 504]

9 minutes ago, SilkSpectre said:

So you're just gonna avoid my question of what these doctor friends specialise in?Are they consultant rheumatologists? Also there are many conditions with an unknown etiology, does not mean we dismiss the condition. Just because we can't cure a condition doesn't mean you cannot treat its symptoms as well. 

How is that any relevant to the discussion, honestly?

Elaborate. Tell me one disease whose diagnosis is solely based on symptoms and by exclusion.

I never said that we can't treat the symptoms, quite the opposite. That's the first goal in the health field.

[SilkSpectre 114]

7 minutes ago, Swine said:

How is that any relevant to the discussion, honestly?

Elaborate. Tell me one disease whose diagnosis is solely based on symptoms and by exclusion.

I never said that we can't treat the symptoms, quite the opposite. That's the first goal in the health field.

Because you started a thread quoting these colleagues laughing off fibro and suggested their medical expertise justified them doing so so I'm waiting for you to clarify their area of expertise. It really isn't a tough or irrelevant question so I'm gonna wait to hear their credentials thanks.

[Swine 504]

12 minutes ago, SilkSpectre said:

Because you started a thread quoting these colleagues laughing off fibro and suggested their medical expertise justified them doing so so I'm waiting for you to clarify their area of expertise. It really isn't a tough or irrelevant question so I'm gonna wait to hear their credentials thanks. 

I have mostly talked to family/urgency doctors, nurses and pharmacists. Which area of expertise were you looking forward to hear, especially since there's no area of expertise dedicated to fibromyalgia?

Are you also going to ignore my questions?

[Ronk 14,082]

The bottom line is that Gaga is in chronic pain, and no matter what name you put on her condition, it may be brought on by exertion, and it may be debilitating.  It's bad.  Gaga is not someone who would make up an excuse not to do what she loves; performing on stage.

[Swine 504]

4 minutes ago, Ronk said:

The bottom line is that Gaga is in chronic pain, and no matter what name you put on her condition, it may be brought on by exertion, and it may be debilitating.  It's bad.  Gaga is not someone who would make up an excuse not to do what she loves; performing on stage.

I agree 100%, the most important part is to help her with her pain.

[SilkSpectre 114]

13 minutes ago, Swine said:

I have mostly talked to family/urgency doctors, nurses and pharmacists. Which area of expertise were you looking for to hear, especially since there's no area of expertise dedicated to fibromyalgia?

Are you also going to ignore my questions?

Well in my country there is and it would be a mainly consultant rheumatologist and /or a consultant neurologist along with specialist physiotherapists. If it was one of these specialities I would be satisfied they have dealt with the condition in enough depth to have formed an opinion. Family and urgency doctors as well as nurses have medical knowledge yes but they don't specialise AT ALL in an arena that would diagnose OR treat fibro.

No I was simply waiting for you to answer mine. Funny though that you changed the goal posts, now it's not just a condition of unknown etiology but one diagnosed solely based on symptoms and exclusion (which is a totally different question lol) -ME is just one, do you want more? Or you wanna change the goal posts again or...?

Anyway, as I said in my first post you and your colleagues should stay in your lane.  Your colleagues sound very unprofessional as no one I know in the medical field would do something as ignorant, they would say "I don't know enough about that particular condition actually" before they would comment either way. The oncologist I know wouldn't  dream of commenting on psychiatric disorders, the cardiologist I know wouldn't comment on a dermatology issue etc etc It's usually quite a common character trait in medical professionals to be humble about what they don't specialise in and none of the medical professionals I know would EVER laugh off a condition, particularly one that causes pain. 

The idea of any doctors or nurses laughing off a condition is sickening to me and they sound like assholes who need a new profession  Bye

[Swine 504]

4 minutes ago, SilkSpectre said:

The idea of any doctors or nurses laughing off a condition is sickening to me and they sound like assholes who need a new profession  Bye

If only people read a little more carefully, I wouldn't be wasting my time now.

[DisBihh 16]

6 minutes ago, Swine said:

I agree 100%, the most important part is to help her with her pain.

Excuse me for swooping in. Yeah i agree too but not only with her actual pain but with the other symptoms that have probably already manifested on her, you can tell she’s doing everything she can for us and it’s very admirable the way she’s able to push through anything 

[SilkSpectre 114]

6 minutes ago, Swine said:

If only people read a little more carefully, I wouldn't be wasting my time now.

You could have posted a much more respectful and productive thread if you wanted to talk about fibromyalgia and what gaps in knowledge are still there. Instead you chose to include that part about you and your colleagues which was wholly unnecessary and decided to wrongly use the word discredited and then patronisingly put the word diagnosis in quote marks. You were tying to be dismissive about a condition many people on this site suffer the real pain of which is really rude. 

[Swine 504]

Just now, DisBihh said:

Excuse me for swooping in. Yeah i agree too but not only with her actual pain but with the other symptoms that have probably already manifested on her, you can tell she’s doing everything she can for us and it’s very admirable the way she’s able to push through anything 

Yes, it's certainly not "just" fibromyalgia. By concept, the disease includes a lot of other "diseases" and symptoms, that's why calling it just one disease might influence the type of treatment she ends up getting. But I am sure she has tried everything, and at this point anything that helps is welcome.

[DisBihh 16]

2 minutes ago, Swine said:

Yes, it's certainly not "just" fibromyalgia. By concept, the disease includes a lot of other "diseases" and symptoms, that's why calling it just one disease might influence the type of treatment she ends up getting. But I am sure she has tried everything, and at this point anything that helps is welcome.

And she herself is discovering that maybe some little tricks do not work, like when she said ice makes the pain worse so she suggests heating pads. Its good that she gives advice on what works for her. I cant wait for her to be ready to talk openly about it and maybe help some people